Seizure the Day

We had a very eventful 4th of July holiday. At the risk of sounding cliche, it was, at first, a day just like any other day. Holidays are usually very low-key in my household because my husband usually has to work as was the case this day too.

I took our daughter to the neighborhood pool where we spent two hours of the afternoon there and then we went home to wash up and cook dinner.

Just after dinner we sat down to watch Houston’s Freedom Over Texas event on TV. My daughter asked for a dessert so I went into the kitchen to prepare it. A few minutes later my daughter made a weird noise. With my back to her, I asked her what it was. No response. I let a few seconds go by and she made another weird noise. I, again, asked her what was going on. No response. I finally said to her, “Hey you need to answer me, what’s going on?” I turned around, and started walking to the couch and that’s when I realized she was having a seizure.

I called for my brother to help me but something was “off” about this seizure and I told my brother to call 911. EMS was at my house in less than 2 minutes (no exaggeration). My daughter was in and out of consciousness and was now complaining of a bad headache and vomiting. We thought it was best to take her to the hospital as she, at the very least, could use fluids after all the vomiting she went through.

Annnnnd here’s the backstory:

When my daughter was born, literally during the birthing process, there was some sort of accident and she was left with a Subarachnoid Hemorrhage (SAH). This caused my newborn to have Grand Mal (now called tonic-clonic) seizures. My daughter, on her second day of life, had already had a Spinal Tap, X-ray, MRI, CAT Scan, EEG, and so many more tests.

The doctors had no idea the extent of the damage her brain sustained and it was going to be one of those “wait and see” things for development.

We were also told that she will be subject to seizures the rest of her life.

We monitored for years with her neurologist and there were no seizures, so we were released from their care.

We thought we dodged a bullet.

There was one time when she was in kinder that she had a small seizure but after a battery of tests and monitoring they determined that it was an isolated incident and that the seizures weren’t back.

Over the last few months, I have noticed my daughter in what I thought might be a postictal state – but as quickly as I noticed it she would come out of it and brush me off. I thought it was misplaced worry.

The event on the 4th of July made me realize our seizure-free honeymoon is over.

This seizure was bad, not tonic-clonic bad, but her postictal state lasted nearly 3 hours, we are told the average is 30-60 minutes. They told us she would be exhausted and she’s been resting since we got home from the hospital right at midnight on the 4th/5th.

The freedoms she once enjoyed, like having her bedroom upstairs, bathing by herself, playing on her phone or tablet, swimming and so much more were taken away from her just like that (she understands it is for her own safety). She’s a bit bored since she can’t really engage with electronics and so I am trying to find “fun” things for a 13-year old to do.

We have since spoken with her PCP and she has an appointment on Monday. We are also looking for a new pediatric neurologist to discuss testing, treatment, and any options we may have.

I have had so many people reach out to me regarding her and lots of people have brought up CBD as a possible cause of the seizure. She does take an all organic, hemp-derived extract, CBD Isolate that comes with a Certificate of Analysis (COA), she gets 250MG one time a day before bed. She had not had any the day of the seizure. We did tell the emergency room physician that she takes CBD daily and that she had not had any, the doctor said that their was no correlation with her seizure and her use of CBD and we needn’t discontinue her daily dose.

We give her CBD because of the brain damage she had sustained from her SAH. CBD can be neuro-regenerative and she has made amazing strides with her developmental delays since starting CBD.

In no way do I think that the CBD takes contributed to the seizure, in fact, CBD is actually used to control seizures and that, in a lot of ways, is the main reason for CBD’s initial rise in popularity. Her seizures at birth and resulting brain damage from the SAH are the reasons I began my investigation into cannabis for medicinal use.


Thank you for reading, Trina

A Positive TESTimony

Anthony, 31, is a single father of two from Richmond, Texas. He was born with a clubbed foot and during his life he had numerous surgeries and years of physical therapy to correct the foot. In May 2016, at the age of 28, Anthony and his doctors decided that if he was going to have any quality of life that it was time to amputate his leg.

The other day I sat down with Anthony to discuss his life since the amputation and how CBD has helped heal him, both physically and mentally, since the surgery.

Anthony, what type of amputation did you have? Ertl, it is a below the knee operation where the surgeon takes a piece of bone and creates a bone bridge between the tibia and fibula.

With this Ertl amputation do you think you are better off in comparison to other amputees? How so? By far. It allows me to be more weight bearing, which in return allows more impact with almost no pain.

Source: Taylor, Benjamin C. and Attila Poka. “Osteomyoplastic Transtibial Amputation: The Ertl Technique.” The Journal of the American Academy of Orthopaedic Surgeons 24 4 (2016): 259-65 .

We have all heard of phantom limb syndrome, when the body still remembers the feel of the amputated body part, but what we don’t really hear about are the phantom pains associated with the syndrome. The Mayo Clinic notes that the pain can be described as, “shooting, stabbing, cramping, pins and needles, crushing, throbbing, or burning.” Can you please describe what a phantom pain feels like for you? There’s 2 types of phantom episodes. One is “phantom sensation” where I pretty much always feel my foot. The other is “phantom pain” and this is the one everyone associates as a generic term. The pains I have experienced so far have been minor electrical zaps/nail thru the toe feelings that are intense, but not constant, foot being crushed in a vice grip, feels like my foot is being slowly ripped off, broken bones (sometimes several at a time) or just that itch you can’t scratch that will drive you mad. It all really depends really.

What did your doctors prescribe to treat phantom pains? Narcotics and Gabapentin.

But you didn’t like the prescriptions because they didn’t grant you true relief, how so? Did you find anything to bring you relief? I had this surgery to free my life, I didn’t want to spend the rest of my life tied down on pills. They never actually helped. In fact, they made my whole situation worse. Finally one day I decided I wanted to do it on my own, not knowing what I was in store for. I lost total control of all my phantom pains and actually started to lose my shit. That’s when I decided to try cannabis.

You started treating with cannabis and found relief? How did cannabis help? Yes. I took one dose of cannabis and was instantly better. When I say better, I mean I was 100% better.

Other than what you just said, did you notice any other changes within yourself that you attribute to your use of cannabis? Since that day I have never taken a single prescription pill for anything. Every single doctor I speak with has been floored that I don’t even take Tylenol for my leg. I have noticed a complete difference in my life.

Recently you switched to CBD. Why did you make the switch? I made the switch because I saw what a difference it was making in my sister’s life. I watched my sister change overnight from someone who wasn’t able to get out of bed most days because she was so sick from her autoimmune disease to someone who barely seemed sick at all. She’s still fighting a battle but her quality of life is so much better. After seeing that, I had to see what it would do for me.

Have you noticed any other positive changes through your use of CBD? My body feels so much cleaner without putting that poison [prescriptions] into it anymore. I wake up everyday before the sun comes up fully energized and ready for the day.

If you had one thing to tell others who are like you, amputee’s battling phantom pains, what would you say? I would say to throw out the poison and actually get your life back.

What brand of CBD do you use and why? Green Compass Global, like my prosthetics, its all about the quality.

You can buy Green Compass Global CBD HERE.